Working together to reduce the global burden of kidney cancer
Kidney cancer is a global issue. Every year, 431,000 people worldwide will be diagnosed with kidney cancer.
Click here for shareable information, graphics and materials about kidney cancer for patient organisations worldwide.
The 2024 IKCC Global Patient Survey is Now Open!
The 4th Global Patient Survey on Kidney Cancer and Kidney Growths (GPS) is now open until 15 November.
Together with Partner Organisations, we’re calling on anyone who has experience with kidney cancer or kidney growths to complete the survey. This includes people who have received a diagnosis or is a caregiver. The information gathered helps create education, awareness and advocacy programs that accurately respond to the needs of people affected by kidney cancer.
EMSO 2024 Summary of Kidney Cancer Highlights
We were at ESMO Congress 2024 in Barcelona, Spain in September for Europe’s premier oncology conference where new data, research findings and education were presented.
Members of the IKCC Medical Advisory Board have created a patient-friendly summary of the ESMO Congress presentations related to kidney cancer treatment. It’s our goal to help support patient organisations, and in turn patients and carers, by sharing the best and most up-to-date information about kidney cancer available. The ESMO Congress 2024 Highlights Summary can be found here.
2024 World Kidney Cancer Day Launched!
World Kidney Cancer Day launched on Thursday 20th June 2024 to great success. The campaign is focused on helping patients and healthcare professionals have better conversations.
The campaign is now live at www.worldkidneycancerday.org where you can find social media content and downloadable resources in 15 languages. Thanks to all Partner Organisations and members of the kidney cancer community who made this year’s campaign a great success!
#WorldKidneyCancerDay24
Tweets from @IKCCorg
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Great to see the responses coming in from around the globe already. This biennial #kidneycancer survey is now available in 16 languages. Thanks to @DrYukselUrun and colleagues for adding Turkish!
#strongertogether @IKCCorg
This week on Kidney Cancer Unfiltered, Sid Sadler opens up about the importance of social media in his #kidneycancer journey. After his diagnosis, Sid turned to social media to find community, humor, and resources.
Listen now!! ➡️ http://shows.acast.com/kidney-cancer-unfiltered
#yac #youngadultcancer
New in 2024: the Global Patient Survey on #KidneyCancer will explore new topics including time to diagnosis, treatment adherence to oral therapies, kidney function and patient preferences. Share your insights today. https://bit.ly/ikcc2024GPS #KCSM
Do you know that the smartCARE project is developing a prototype app for #️cancer patients🫶 ?
Last week, members of ECO’s Patient Advisory Committee had a hands-on demo. 📱
Their feedback will be instrumental as this innovative digital tool evolves. We thank them for their…
Great opportunity!
“A few years ago nobody would think about giving a kidney to someone who had just finished dealing with cancer, but now for certain types of cancer we’re even giving transplants for patients who are not completely cured.” – Dr. Sabine Karam
🔗https://bit.ly/KidneyCANandNFK
Did you know?
Kidney cancer is often found by accident.
Kidney cancer is the 14th most prevalent cancer worldwide.
About 59 per cent of kidney cancer cases occur in more developed countries.
Our Global Network
IKCC welcomes every organisation that has an interest in kidney cancer and who pledges to conform to our Code of Conduct. We extend an open invitation to become part of this international network.
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In the newsletter we highlight news about kidney cancer diagnosis and treatment, and other relevant discussions.